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Teen With Rare Disease Inspires Elmwood Park To Run For Awareness

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Dee Dee Ingui, 16 of Elmwood Park, has Peutz-Jeghers Syndrome, a rare genetic disease. She is the inspiration behind the non-profit, Rare is Beautiful.

ELMWOOD PARK, N.J. – A few years ago, Denise and Sal Ingui didn’t know the signs of Peutz-Jeghers Syndrome.

How would they?

After all, it is estimated that just one in every 300,000 people have the rare genetic disease.

Then in 2015, they learned their daughter Dee Dee was one of them.

The disease ...


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